Information on Summary Care Record and care.online
How information about you helps us provide better care
Important Information for Patients Regarding Data Extraction HSCIC
Confidential information from your medical records can be extracted from our clinical system by NHS England to improve the services offered. This medical information, along with your postcode and NHS number (but not your name) is sent to a secure system where it can be linked with other health information.
You have a choice. If you have any concerns or wish to prevent your information leaving the practice, please contact us.
An information leaflet is available along with some Frequently Asked Questions. Also, further information can be found at www.nhs.uk/caredata
Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care. It is important that we, the NHS, can use this information to plan and improve services for all patients. NHS England would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help provide a full picture. This will allow the NHS to compare the care you received in one area against the care you received in another, so we can see what has worked best.
Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then be used by others, such as researchers and those planning health services, to make sure we provide the best care possible for everyone.
How your information is used and shared is controlled by law and strict rules are in place to protect your privacy. We need to make sure that you know this is happening and the choices you have.
Please take time to read this Patient Information Leaflet. You need to make a choice.
Frequently asked questions for patients:
- Why do I need to read the leaflet ‘how information about you helps us provide better care’?
It is important that you read the leaflet so that you understand how information in medical records is used. Your records are already used by healthcare staff to provide your care. You also need to know how your information can be used to improve the way the NHS delivers care to all patients.
If you are happy for your information to be used to improve health services then you do not need to do anything. However, it is important that you know this is happening and what to do if you have any questions or concerns [See FAQ 14]. Read more…
What is care.data?
care.data was a programme led by NHS England and NHS Digital that focused on bringing together securely, health and social care information from different settings in order to see what works well in the NHS and what could be done better.
Latest news [Recent Update]
The National Data Guardian for health and care recently published a review of the choices patients have regarding the sharing of their information. The review recommended new ways for people to consent to, and/or opt out of, their information being shared. As these are different to what was proposed as part of care.data, NHS England has taken the decision to close the programme.
However, the government and the NHS remain absolutely committed to improving patient health by connecting information nationally – while ensuring it is handled securely and patients are aware of the choices they have. This work will now be taken forward by the National Information Board, working closely with GPs and other healthcare professionals.
If you have any questions about the care.data programme, please contact [email protected]